We are a little over month out since Rae’s brain surgery to alleviate or reduce her seizures. She is doing well. All of her stitches are gone, and now we are just watching her hair grow back and her scar to fade. Her hair is not growing fast enough for her, so she just keeps wearing her hats. She does not want anyone to see her hair or her scar. After any type of brain surgery, recovery will be slow. She and her brain get tired easily. We are doing school, but it is slow. We are going at her pace and not pushing her too much. She is good at telling us when it has been too much. We can usually tell the next day. There are some memory deficits, but we are working on recovering those. The doctors told us this is normal. I am having to slow my walking down with her. I am used to walking quickly to get where we are going, but she will remind me that if she goes to fast she gets dizzy. She is also taking stairs carefully still.
One thing she was happy to be doing again is playing her clarinet and going back to band. It does make her a little dizzy, but she is wanting to start practicing again. She is also singing up a storm.
As far as results from the surgery, we will not fully know anything for 6 months or more. They will not start reducing any meds for a while. Things we do know – she is happier (other than normal pre-teen angst), giggles because she thinks Hannah is funny, and eating like crazy. She has not had any seizures since the surgery – PTL! She is able to read longer without stops or “blips” from her brain. Her Lego ability has not been deterred either.
We are so thankful and praise God for how well her recovery is going. We just keep waiting to see how well she continues to improve and will progress.